Wednesday, September 9, 2009
Thursday, September 3, 2009
Monday, August 31, 2009
Friday, August 21, 2009
She is a spastic quad, so she obviously doesn't move real well. Well not this morning! She was laying sideways in her bed, and she is long, so her toes are hanging out on one side, and her head is pushed up against the other side with her hair falling into her face and over her eyes. I smell it before I see it... She is covered from head to toe in Poo. And I mean SERIOUS Poo. It is bubbling out of her diaper on both sides, and it has formed a circle in her bed from where she laid in it then decided to turn in circles to get away from it. And she is wearing a brand new night gown. I actually stood there looking at her for a good 5 minutes deciding where to begin. So I put on gloves (LOL) and begin removing her clothes. At one point I contemplated cutting her nightgown off of her. Yes it was THAT bad. So I finally get her undressed and, by this time, she is laying with her head at the foot of the bed, with her feet elevated above her head. About this time, I hear the dog wining to be let out, so I left her there, ran to let the dog out, got sidetracked outting away scripts and I hear her go, "HHHHmmpf!" "Oh yeah, Ava's still got a poo mess." So I head back to her room, strip her naked, lay her on some clean chux pads (still wearing gloves) and grab her soiled clothes and chux pads and head to the trash can. I go ahead and give her a bath because she had pee and poo all up in her hair and everything. So I clean her up, lotion her up, put a clean diddy on her, and wrap her up in a towel and lay her in the chair in her room. Next thing I know I hear Aohdan calling, "Mommy, I want pancakes! Mommy I wanna watch the white puppy (BOLT), MOMMY!!" So I run and get my 3yo squared away. Once again i get sidetracked in the kitchen and hear Ava again go, "HHHHMMPF! I go into her room and, once again, she has wiggled out of her towel, pulled one side of her diaper off, and is laying sideways in the chair looking at me like, "Come on Mom, finish with me already!" So I kiss her on the forehead and explain that her bed is still full of poo and I need to change out her sheets before we can snuggle. "KNOCK KNOCK KNOCK!" The nurse interview has arrived. Really? Can I just get done with one project? Has anyone seen the movie 'Something to talk about' an older Julia Roberts movie? In the movie, Julia Roberts keeps getting forgetting about her daughter and leaving her places--Lol! That's how I felt. So I open the door and show the nurse interview into our home, and of course Ava's room is right there when you walk in. So the nurse looks around me and sees Ava (who now has here entire head hanging off the side of the chair looking at us) and goes, "And this must be Ava!" We really do try to have fun with things in our household, because when you're raising a special needs child you really have to have a sense of humor about things.
Monday, June 1, 2009
This is our 3 Year old Son, Aohdan, singing 'Jesus Loves Me' for us at the family dinner table. He just started singing like this out the blue! It seems like just a few months ago I couldn't get him to concentrate long enough to sing 1 line of a song, let alone the whole thing. This video gets cut off at the very end, but he actually sings the entire Hymn...twice! Wait until I get him on video singing some of Cross Current's rockin songs *grinning*
Saturday, May 30, 2009
Aohdan goes to the Hartford Library every tuesday and sees Aunt Pearl and Miss Faith with his babysitter. He has learned so many things during his time there, colors, shapes, songs, all kids of stuff. But [I feel bad saying this] I had NO IDEA he knew the entire Pledge of Allegience until one day he goes, "Mommy, put your hand over your heart..." and starts reciting the whole thing! It was sooooo cute and he was SO proud!