Once again it has been way to long since my last update. There is lots and lots to share since, what, November? Gosh it has been awhile! Here goes...
AVA: All has been good with her. We made it through, yet another, cold and flu season without a hospitalization! The Docs tell me they don't have many trach patients that have managed to make it 2 years without an illness requiring an overnight stay. We absolutely feel extremely fortunate to have stayed out of the hospital. We also have a freegin awesome nursing staff who know Ava very well and watch her like a hawk! There are a couple things that have developed recently. #1, she is not growing. Literally. She has not grown an inch in over a year. She is the exact same weight and length that she was this time last year. So currently we are working with endocrinology and nutrition to come up with a plan to help her little body kick into gear. I know a lot of kiddos with her type of disability do not grow well, but no growth in a year? So we're digging into that mystery. #2, her little feet are turning in and dropping. No matter what we do we cannot keep it from happening. So we took her to see physical medicine, and they have approved her for botox treatments. Sounds wierd, I know, but botox has been used to treat spaticity in kiddos with CP with great results! So she is getting botox sometime in March. Keep her in your prayers for this procedure, both for minimal pain and for the procedure to correct her little feet!
AOHDAN: Aohdan is doing well! He is in pre-school and scheduled to start kindergarten this fall. He continues to be his funny, witty, and ornery self!
KENNY AND I: Kenny and I are doing well. I am scheduled to graduate from nursing school in June, and life is just...well...hectic right now. I am not sure of my plans once I graduate. I entered into nursing school with the lojg-term goal of getting my nursing license with Ava's disability in mind. We have an excellent nursing staff right now, and I really don't see things changing, so I have some decision to make. Continue my education on a part time basis and get some experience out in the field. Go back into the car business full time. Or just hang out and wait to see where God takes me. Kenny and I are also doing well. We are still renting the same house in Ashley. Though currnently it does not look very promising to purchase this home, I am hoping for a miracle. We definitely do not want to move again! But the two of us are doing really well! We make an effort to get out of the house and go on 'dates.' We also try once a month to go away somewhere for a night, just the two of us. We bought tickets to go and see Kirk Cameron's, 'Love worth fighting for.' It is a marriage conference for couples. It is great to go to marriage 'tune-ups!' Kenny and I have a Great marriage..and I want to keep it that way!! We actually try to go to at least (1) marriage-related event a year. We were told once (shortly after Ava's birth) that the divorce rate after a child death/major injury is like 80% within 5 years. Crazy huh?! We both decided that THAT is not an option for us! Besides, we're like peas and carrots=v)
Well, sorry if some of this kinda runs together! Haha! I made up my mind I was going to FINALLY update her caring bridge site, but typed really fast cuz I have clinicals tomorrow at 6:30am.
Thank you all for your continued prayers! God bless you all!
AVA: All has been good with her. We made it through, yet another, cold and flu season without a hospitalization! The Docs tell me they don't have many trach patients that have managed to make it 2 years without an illness requiring an overnight stay. We absolutely feel extremely fortunate to have stayed out of the hospital. We also have a freegin awesome nursing staff who know Ava very well and watch her like a hawk! There are a couple things that have developed recently. #1, she is not growing. Literally. She has not grown an inch in over a year. She is the exact same weight and length that she was this time last year. So currently we are working with endocrinology and nutrition to come up with a plan to help her little body kick into gear. I know a lot of kiddos with her type of disability do not grow well, but no growth in a year? So we're digging into that mystery. #2, her little feet are turning in and dropping. No matter what we do we cannot keep it from happening. So we took her to see physical medicine, and they have approved her for botox treatments. Sounds wierd, I know, but botox has been used to treat spaticity in kiddos with CP with great results! So she is getting botox sometime in March. Keep her in your prayers for this procedure, both for minimal pain and for the procedure to correct her little feet!
AOHDAN: Aohdan is doing well! He is in pre-school and scheduled to start kindergarten this fall. He continues to be his funny, witty, and ornery self!
KENNY AND I: Kenny and I are doing well. I am scheduled to graduate from nursing school in June, and life is just...well...hectic right now. I am not sure of my plans once I graduate. I entered into nursing school with the lojg-term goal of getting my nursing license with Ava's disability in mind. We have an excellent nursing staff right now, and I really don't see things changing, so I have some decision to make. Continue my education on a part time basis and get some experience out in the field. Go back into the car business full time. Or just hang out and wait to see where God takes me. Kenny and I are also doing well. We are still renting the same house in Ashley. Though currnently it does not look very promising to purchase this home, I am hoping for a miracle. We definitely do not want to move again! But the two of us are doing really well! We make an effort to get out of the house and go on 'dates.' We also try once a month to go away somewhere for a night, just the two of us. We bought tickets to go and see Kirk Cameron's, 'Love worth fighting for.' It is a marriage conference for couples. It is great to go to marriage 'tune-ups!' Kenny and I have a Great marriage..and I want to keep it that way!! We actually try to go to at least (1) marriage-related event a year. We were told once (shortly after Ava's birth) that the divorce rate after a child death/major injury is like 80% within 5 years. Crazy huh?! We both decided that THAT is not an option for us! Besides, we're like peas and carrots=v)
Well, sorry if some of this kinda runs together! Haha! I made up my mind I was going to FINALLY update her caring bridge site, but typed really fast cuz I have clinicals tomorrow at 6:30am.
Thank you all for your continued prayers! God bless you all!
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